FTD Disorders Registry

The FTD Disorders Registry (FTDDR) is designed to bring together the frontotemporal degeneration (FTD) community. This means persons diagnosed, their family members, caregivers, and friends as well as clinicians, scientists, patient advocacy groups, and the pharma/biotech industry.

Find a genetic counselor

Genetic counselors offer patients tools and information related to their personal health. The Find a Genetic Counselor directory offers access to over 3,300 genetic counselors (US and Canada). Learn more about how to find a genetic counselor near you.

University of Alabama Birmingham Brain Aging and Memory Clinic

Clinical care for patients with memory disorders is provided through the University of Alabama Birmingham Brain Aging and Memory Clinic at The Kirklin Clinic. Learn more or book an appointment at the clinic.

University of California
San Francisco Memory and Aging Center

The UCSF Memory and Aging Center is an NIA-designated Alzheimer’s Disease Research Center working to translate research science into improved diagnosis and care for people with dementia due to Alzheimer’s disease and related diseases, as well as to find a treatment or prevention. Learn more about the center.

Smith Family Clinic

The Smith Family Clinic for Genomic Medicine uses the power of genomics to solve cases of undiagnosed disease and provide answers to families and physicians. The clinic’s mission is not only to help find answers but also to give patients the best clinical care and a positive medical experience. Learn more about the clinic.

Clinical trials

Clinicaltrials.gov is a database of privately and publicly funded clinical studies conducted around the world. Learn more about clinical trials and how you can get involved.