Educate and inspire individuals to improve health outcomes and advocate for adults and children with Tyrosinemia and related disorders. The Tyrosinemia community of advocates, caregivers and health professionals is a complex and evolving health care environment that will benefit from inspirational leadership. In collaboration with universities and health care industry professionals, we are committed to excellence through advocacy, education, scholarship, clinical practice, and service to families affected by Tyrosinemia.


To have a global reputation for transforming health care outcomes for those affected by Tyrosinemia and related disorders through advocacy, education, and research.

Beth Barnby, DNP, ACNP-BC, FNP-BC, CRNP President, Co-Founder

Mark Reynolds, DNP, RN, COI Vice-President, Co-Founder

All resident associate companies on the HudsonAlpha campus are independently owned and operated.